Welcome to the Dystonia Bulletin Board

The Dystonia Medical Research Foundation (DMRF) sponsors this board to encourage patients with all forms of dystonia - particularly those who do not have access to a "in person" support group - to share their experiences and frustrations. It is intended primarily for patients and their families rather than health care providers or other professionals, although they are always welcome to drop in and visit.

All messages on this bulletin board represent the personal opinion of the individual posting the message. The Dystonia Medical Research Foundation and the moderators do not assume any responsibility for verifying the identity of any participant or for the content of any message posted here. Nothing on this bulletin board should be considered medical advice.

This FAQ has several parts:

  1. How To... - The mechanics of how to use the Bulletin Board
  2. The Rules of the Road Rules and Etiquette for BB participants,
  3. Using the Bulletin Board Effectively - including some tips on how to get the most out of your participation in the Dystonia BB
  4. Living with Dystonia - Some sources of information about Dystonia on the internet, and some of the more common questions and topics that have been discussed on the BB in the past.
  5. Treating Dystonia some general information about traditional and alternative treatments for dystonia