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Posted by: Peter W. Iltis ® 11/18/2002, 12:03:59 Author Profile Mail author |
Greetings, all. (Glen, a special greeting to you!) I am (was) a former free-lance horn player who also happens to be a researcher in human movement. I hold a Ph.D. in exercise physiology and teach in the Department of Movement Science at Gordon College in Wenham, MA. As a relatively recently diagnosed victim of embouchure dystonia, I have taken an intense interest in this area. I attended the 4th International Dystonia Conference in Atlanta last June, have visited Dr. Steven Frucht in NYC, and recently published a short article in The Instrumentalist on what may be one of the many and mysterious ways FTSD comes about. That article is greatly abbreviated from the original form, so if you have read it and want the original referenced text, I'd be happy to send it to anyone interested. My laboratory is currently conducting research on embouchure dystonia using electromyography (a method of measuring the electrical activity of the muscles of the embouchure). There seem to be rather clear patterns of EMG activity that are expressed during tremor and spasm that we intend to describe and compare to normal performers for publication in the excellent journal, Medical Problems of Performing Artists. For this research, I am soliciting brass players who have embouchure dystonia to volunteer as subjects for study. The procedure is very simple, involving surface electrodes placed on the face for the monitoring of activity during attempted performance of note production. If you are anywhere near the Boston area and think that a trip to our lab might be interesting, I'd love to hear from you. Further, our long-range goal is to attempt to utilize EMG-biofeedback as a means of re-training the muscles. Frankly, I'm not overly optimistic about this method of retraining yet, but it poses some interesting possibilities. I am applying for grant support from the Dystonia Medical Research Foundation to help us get this going on a wider scale, but for now, we've got to restrict ourselves to studying folks who can get themselves here at their own expense. I look forward to hearing from many of you. |
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Re: Research on focal dystonia Re: Research on focal dystonia -- Peter W. Iltis Top of Thread Archive
Posted by: Lauren ®
11/18/2002, 21:42:00
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Hi Peter,I'm interested in the article that you wrote. Could you please tell me which issue it is in?
Thanks,
Lauren
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Re: Research on focal dystonia Re: Re: Research on focal dystonia -- Lauren Top of Thread Archive
Posted by: Peter W. Iltis ®
11/19/2002, 17:09:48
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It's in the September issue of The Instrumentalist. Again, if you want a more detailed version with references, I can send it along too.
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Re: Research on focal dystonia Re: Research on focal dystonia -- Peter W. Iltis Top of Thread Archive
Posted by: Margot C. ®
11/20/2002, 23:46:49
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Hi Peter,
I haven't read your article but am interested to hear that you're doing research.
Just a thought I had, I am in touch with a cellist in Germany who had focal dystonia, who after seven years of retraining is now at the point where he is symptom-free. He used a technique called dispokinesis for his retraining. He says he knows of a few other musicians who have also recovered, although generally they are wary of talking about their condition because of how it may affect their career.
But I just wondered whether the researchers in America are interested to know that there are people who have recovered through retraining in Germany. Would this aid their/your research in any way?
I'd be interested to hear your response,
Good luck with your research,
Kind regards
Margot C
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Re: Research on focal dystonia Re: Research on focal dystonia -- Peter W. Iltis Top of Thread Archive
Posted by: Clive ®
05/23/2003, 14:20:04
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I would be very interested in your article. I'd be very interested if you could send it. Can you attach to an e-mail?? If not, I will pay for post+packaging if you give me your details.
Regards
Clive Dickinson
1176 Stockport Rd
Levenshulme
Manchester
M19 2RA
U.K.
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Clive - your email address please? Re: Re: Research on focal dystonia -- Clive Top of Thread Archive
Posted by: David Barton ® David Barton (NZ)
05/23/2003, 20:19:52
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Please confirm your e-mail address - at present it shows invalid recipient:
clive.dickinson7@ntlworld.com
SMTP error from remote mailer after RCPT TO:<clive.dickinson7@ntlworld.com>:
host smtp.ntlworld.com [62.253.162.40]: 550 Invalid recipient:
<clive.dickinson7@ntlworld.com>Best wishes
David Barton
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Re: Clive - your email address please? Re: Clive - your email address please? -- David Barton Top of Thread Archive
Posted by: Clive ®
05/30/2003, 12:14:52
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my home e-mail account has not been working for a while - the address is corret (clive.dickinson7@ntlworld.com)
Try my work address (more stable although I try not to give it out as much):
Regards
Clive
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