Pacific Regional Dystonia Patient Symposium
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Posted by: Anne Brett ®

06/28/2003, 07:37:02

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Make plans now to attend the Pacific Regional Dystonia Patient Symposium to be held on Saturday, September 6, 2003, at the Doubletree Hotel Irvine Spectrum in Irvine, California. Symposium co-coordinators Neal Hermanowicz, M.D., Director of the Movement Disorders Program and Associate Professor and Vice-Chair of Clinical Affairs in the Department of Neurology at UC Irvine, and Martha Murphy, Leader of the San Diego Dystonia Support Group, Regional Co-coordinator for the Pacific and Northwest, and Pacific Patient Advocacy Director for the Foundation, have put together an impressive program for the day. This educational event features a wealth of well-known speakers, including Neal Hermanowicz, M.D., Mahlon DeLong, M.D., David Song, M.D., Ph.D., Mitchell Brin, M.D., David Swope, M.D., Zeba Vanek, M.D., Giselle Petzinger, M.D., and Jennifer Friedman, M.D., who will discuss secondary dystonias, surgical treatment, exercise and brain repair, botulinum toxin therapy, the latest in genetic research and much more.

The registration fee for the Symposium is $25.00 per person which includes all conference materials, a light breakfast, lunch and breaks.

The Symposium will be held at the Doubletree Hotel Irvine Spectrum, 90 Pacifica Avenue, Irvine. A block of rooms has been reserved for September 5 and 6 at the special discounted price of $79; reservations must be made by August 22 to receive this special rate. To reserve a room, call 949-471-8888, and mention Dystonia Symposium.

To register, call the DMRF at 312-755-0198 or email us at dystonia@dystonia-foundation.org. You can view a complete copy of the symposium program or register online at
www.dystonia-foundation.org/events.







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Re: Pacific Regional Dystonia Patient Symposium
Re: Pacific Regional Dystonia Patient Symposium -- Anne Brett Top of Thread Archive
Posted by: Angelika Veach ®

06/29/2003, 16:55:30

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Dear Anne~ Will the information from the event 9/6/03 in Irvine be posted on the BB here? Also, do you know of anyone I can e-mail anyone that may be involved in support groups in Hawai'i?

Thank You~ Angelika alohaaina@mymailstation.com







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Re: Pacific Regional Dystonia Patient Symposium
Re: Re: Pacific Regional Dystonia Patient Symposium -- Angelika Veach Top of Thread Archive
Posted by: Anne Brett ®

06/30/2003, 04:49:03

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Hi Angelika

No, the transcripts of the 9/6/03 Dystonia Symposium in Irvine wouldn't be posted on the Bulletin Board. They are much too lengthy. You will find transcripts of the various Dystonia Symposiums that have been held up on our International Dystonia On-Line Support Group website http://www.dystonia-support.org Just click on the Symposium Reports link.

For a listing of support groups - world wide - see the Dystonia Medical Research Foundation's website http://www.dystonia-foundation.org

Best Wishes

Anne Brett
www.dystonia-support.org







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Re: Pacific Regional Dystonia Patient Symposium
Re: Pacific Regional Dystonia Patient Symposium -- Anne Brett Top of Thread Archive
Posted by: aronsklar ®

06/30/2003, 17:48:24

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Hi,

I was just wondering if there was going to be anything of interest to those suffering with focal embouchure dystonia. I just wanted to make sure that I didn't go to the convention, and that it was all concerning the genetic dystonias. If you have answer I would greatly appreciate it. Thanks.....

Aron Sklar







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Re: Pacific Regional Dystonia Patient Symposium
Re: Re: Pacific Regional Dystonia Patient Symposium -- aronsklar Top of Thread Archive
Posted by: Anne Brett ®

07/01/2003, 12:23:01

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Hi Aron

Check the Dystonia Medical Research Foundation's website for the entire program. http://www.dystonia-foundation.org and this symposium will be listed under Events.

One great thing about these symposiums is the opportunity to ask questions of the medical professional panelists, or to catch them on one of the breaks and question them then.

Hope that helps some.

Anne







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