Dystonia Bulletin Board

Re: Dystonia and Menstrual Cycle
Re: Dystonia and Menstrual Cycle -- Akasha Post Reply Top of thread Forum
Posted by: Beverley ®
05/05/2008, 21:05:22

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Hi Akasha,

I have Dopa-Responsive Dystonia (DRD) also. The one thing I can tell you is that while I was waiting to have a hysterectomy due to very large fibroids. My symptoms progress very rapidly downward. The 8-9 months it took for my insurance company to finally approve my surgery was a nightmare and during that time is when my walking went from a slight limp to a slow and uneasy shuffle.

I have never heard that there is an actual link between DRD and hormones but to me I would say that there seems to be.

Beverley




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