Dystonia Bulletin Board

Loss of mobility, loss of strength in arms, and legs.

I found that having custom made braces have been perfect for my hands and arms. I wear them as precaution if I am going somewhere that I could possibly fall etc. baking and on!

I am busy with a home, 3 dogs, lots of stairs a husband and 2 children.

Many people look at others that stay home and do not realize that having many things in your life requires flexiblty along with restrictions. You have to juggle because of the Dystonia's. Drs and PT, do not get it!

All of my joints are so large. I had x-rays they all showed that my joints are ok! I now need support on the large musle groups knees! I use compression gloves and splints. I have sensitivity issues!

My physical activity is walking. No one understands if you touch a certain part of my body I am in spasm and PAIN!

I always try and have Drs really understand but some look at me and really expect so much more than I can give them.

I do not get upset, I get frustrated!