Dystonia Bulletin Board

newly diagnosed in New Mexico, need support
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Posted by: tracyg ® 05/12/2008, 16:07:47 Edit

Hi, I was recently diagnosed with dystonia after many wrong diagnosis for 5 years. Most doctors thought I was just making up my severe pain in my legs and arms and the severe muscle spasms. Now after being diagnosed and trying carbidopa-levo, and it making me extremly ill my doctor does not know anyother meds or treatments to help me and just left it at that. She also said most people do not have pain, making me feel again I am alone. I live in rural New Mexico 5 hours from Albuquerque and have no support available. I just want to become a part of this support network. I have never been in a message board forum and I am nervous about what to say. Does anyone else have these feelings and problems with getting medical help? Thank you for any response! Tracy

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Re: newly diagnosed in New Mexico, need support --- Paul Kavanaugh ( 05/12/2008, 19:00:46 ) link Re: newly diagnosed in New Mexico, need support --- Vettey ( 05/12/2008, 19:22:48 ) Re: newly diagnosed in New Mexico, need support --- karen beaver ( 05/13/2008, 05:23:06 ) Re: newly diagnosed in New Mexico, need support --- tracyg ( 05/13/2008, 11:30:42 ) Re: newly diagnosed in New Mexico, need support --- fraugrau ( 05/13/2008, 06:36:41 ) link Re: newly diagnosed in New Mexico, need support --- tracyg ( 05/13/2008, 11:16:05 ) Re: newly diagnosed in New Mexico, need support --- Alaskan ( 05/13/2008, 10:10:30 ) Re: newly diagnosed in New Mexico, need support --- tomspasm ( 05/13/2008, 10:28:05 ) Re: newly diagnosed in New Mexico, need support --- Alaskan ( 05/13/2008, 12:43:27 ) Re: newly diagnosed in New Mexico, need support --- tomspasm ( 05/19/2008, 10:44:08 ) Re: newly diagnosed in New Mexico, need support --- Beverley ( 05/14/2008, 09:47:45 ) Re: newly diagnosed in New Mexico, need support --- tracyg ( 05/14/2008, 12:29:42 ) Re: newly diagnosed in New Mexico, need support --- Vettey ( 05/14/2008, 19:10:40 ) Re: newly diagnosed in New Mexico, need support --- Beverley ( 05/14/2008, 21:40:25 ) Re: newly diagnosed in New Mexico, need support --- audee ( 05/14/2008, 19:47:15 ) Re: newly diagnosed in New Mexico, need support --- NettieMae ( 06/08/2008, 21:28:00 )