Dystonia Bulletin Board

Re: newly diagnosed in New Mexico, need support
Re: Re: newly diagnosed in New Mexico, need support -- Alaskan Post Reply Top of thread Forum
Posted by: tomspasm ®
05/13/2008, 10:28:05

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Hi Alaskan,
Curious to know - did you give up golf because you assumed you wouldn't be able to play, or did you have some bad experiences on the course? The reason I ask is that one of the first mysteries that I had to solve was why I could play golf with no involuntary spasms but have constant problems elsewhere. So for me, golf courses are good places, except if they have power lines running thru them.

I'm not a fisherman, but boats are usually good places for me, as is the beach. Basically any location out away from power lines and other man made sources of energy are good places for me.

I also find sitting or laying down to be much better in the house than standing. I can often sit in comfort, then stand up and my right shoulder will raise up and be painful. It is relatively rare for me to have problems while lying in bed, but my shoulder is always a problem while standing, sometimes a mild problem, sometimes severe.

I am 52, problems started 10 years ago in eyes, moved to mouth/jaw 3 months later, several years later neck/shoulder, both legs/feet got involved. Rarely I will have spasms in the right side of my torso. Don't do any drugs or Botox.

TomSpasm




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