Posted by: icis242000 ®
05/13/2008, 16:43:58
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It's hard not knowing what this disorder can do to you. At the age of 21 I was told by an eye doctor to see a neurologist, she thought it was MS. I have been to UPMC, The Cleveland Clinic and 3 other neuros. I finally found 1 that has helped me. I get botox injections and take many medicines. There are also a lot of meds that I can't take because they make me sick or cause the Dystonia symptoms to get worse. Everyone is different. I hope things go well for you and your family. God Bless You!! April
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