Dystonia Bulletin Board

Re: Any advise or inspirational words - spasmic torticollis
Re: Any advise or inspirational words - spasmic torticollis -- tans Post Reply Top of thread Forum
Posted by: Jessica Feeley ®
05/15/2008, 08:44:59

Edit
Hi Tans,

If you currently live in South Africa you may already be familiar with the Dystonia Association of South Africa:
http://www.dystonia.org.za/

The organization may provide opportunities for you to meet other people with movement disorders and learn about their experiences with area doctors and treatments.

We are happy to mail you materials (I'm afraid they are only available in English) that may help your husband and others understand what you are going through. Our website is also available: http://www.dystonia-foundation.org

This is a very supportive forum--you'll make many friends here who understand what you are going through.

Best wishes,
Jessica Feeley, Editor
Dystonia Medical Research Foundation
www.dystonia-foundation.org




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