Posted by: twitchy sis ®
05/16/2008, 22:15:11
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I don't post here often, but I know exactly what you are going through. I've had this for almost 30 years. I am 52 now. I MAKE myself go out and do things. I know I will get stares with my head tremor. I have a trip planned and thinking about getting checked at the airport frightens me. I WILL appear nervous, so I expect to get checked. I continue to do things, some times I suffer the next day, but it's worth it. I don't want to spend the rest of my life living in my home. There is so much beauty in the world to see and so many things to do, or if you can't do them, then watch others do them. I find joy in watching my Grandkids do the things I can no longer do. I enjoy the small group of friends that accept me for who I am. You'd be surprised at how many people, once they get to know the inner "you", totally forget about the dystonia. I only wish the best for you and hope that you get out and enjoy. Don't waste your life. I did for many years.
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