Dystonia Bulletin Board

Re: PLEASE HELP!!!!!
Re: PLEASE HELP!!!!! -- Troubled Dad Post Reply Top of thread Forum
Posted by: Andi ®
06/27/2008, 19:56:11

Edit
I would recommend the Movement Disorder Clinic at University College San Francisco (UCSF). If that is not to far for you to go.

It sounds like Dystonia. That's how mine started with my foot turning in at age 5. One thing I would say is it is probably best not to let any doctors do any orthopedic surgery on her until you have a diagnosis. I had many orthopedic surgeries as a kid. All a waste of time.

Andi




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