Dystonia Bulletin Board

Re: PLEASE HELP!!!!!
Re: Re: PLEASE HELP!!!!! -- Andi Post Reply Top of thread Forum
Posted by: Alaskan ®
06/29/2008, 10:21:38

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I agree with Andi.
I live in Alaska and the neurologist I was seeing in Anchorage told me not to waste my time and $$ with other neurologists in Alaska but rather get my body to a major institution that specializes in muscle movement disorder and he recommended UCSF. He felt it was the best in the West. I went. Four specialists examined me and within two days collaborated and diagnosed me with truncal dystonia and recommended my course of action. I guess my way of thinking is that more brains attacking the problem the better, not unlike taking your car to an auto repair shop. Four mechanics have a better chance of determining the problem than one. Good luck



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