Posted by: pondskipper ®
06/30/2008, 21:25:50
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Hello A, I am new to this forum. I was finally diagnosed with dystonia about six months ago by my neuro and am finally going to see a movement specialist the end of July to figure out what form and if they can do anything for me. We do know its not dopamine responsive. Anyway I have exsperianced very similar spells except I can still speak and I end up with a splitting headache. I am wheelchair bound 50% of the time and also ware a set of braces for short distance outings which help alot, Got to keep going u know !! Hope this helps. Take Care PONDSKIPPER
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