Dystonia Bulletin Board

Re: My beautiful writing
Re: Re: My beautiful writing -- Mary Beth Post Reply Top of thread Forum
Posted by: karen beaver ®
07/01/2008, 04:56:15

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what i did was give my son some info on dystonia, he also gave some to his teacher , both teacher and principal were going to look it up.
My son did it so casualy and i thought gee he is so cool, it has never bothered him my disorder because he can tell people what i have.
he even told pruners in the orchard we own, when one saw me limp. I didn't know but my son told me later that day. and the pruner was so interested, never heard of dystonia.
I went for a walk along the beach yesterday and had along think, how do i keep living with my tremor and tenseness, and i was tired from the sea air, it's winter here but warmer than usual but still need a jacket. I had a good think on that beach with hardly anyone around, i can choose to listen to the few comments or carry on as i have been and just be glad at all i have.
I ask my son after school if the teacher and principal got back to him yet but it's early days. Maybe they will or maybe they won't. But i think i did the right thing this time by getting my son to show them what i have so next time theres a rough note signed she'll know it is his mum.
When my son was only 6 i took along a form to his school that i filled out, and the office lady asked if my son wrote that, i just said yes, I was so embarrassed about my writing. It was a few years later that i was diagnosed.
My husband said i should have said i wrote it, and i have a tremor as i knew i had that, she would have felt sorry for me though.and that's worse.
karen
p.s. writing is the hardest to overcome, because if you can't write they think your illiterate, i'm not. i just find it hard because my hand won't work properly.



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