Dystonia Bulletin Board

Re: ARTANE and tolerance
Re: Re: ARTANE and tolerance -- brisvegas Post Reply Top of thread Forum
Posted by: Vettey ®
07/03/2008, 07:33:45

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Unfortunately, Dystonia Australia had to close last year due to lack of funds. I had only just found them, so i was pretty dissapointed when they had to close.

I wouldn't recommend any of the pediatric neurologists that i saw as a child. I wasn't correctly diagnosed until i left the children's hospital system and saw an adult neurologist (even though my dystonia (DRD) is a childhood onset condition).

I have a friend with dystonia who lives in Queensland, i will e-mail her to see if she has any ideas for you.

Take care,

Vettey




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