Dystonia Bulletin Board

I haven't been able to log here for a few days, keeps giving me an error message when i try to post.

Although it's no fun anybody having dystonia, my sister's experience has given her some insight into what i have been through. And my experience has been able to give her a name for what is happening to her.

My sister is not aware of what is happening during her seizures, but is aware when it is just dystonia. Her seizures have never been caught on EEG, so it might be something to keep in mind.

It is always interesting to see how different dystonia can be in different 'types' and different people.

I have DRD, but also used to have times (pre-medication) when although i was fully aware of what was happening i couldn't signal my awareness to those around me. The dr never had an explanation.

Thanks for replying,

take care,