Hi Lee. I have cervical dystonia, and some of your symptoms I have as well. Mainly the headaches/migraines (every day for 25 years or so), neck and shoulder pain, pain and pressure in the face. I don't have a prominent tilt or rotation (for the average person to look at me, they would never know).Is your current treatment relieving some of the pain? I have had Botox twice, and did find some relief (especially from the headaches) for a few weeks with the first round. Second round was just the other day, so I'm not sure yet what the effects will be. Once the Botox wore off (just before Christmas) my headaches and migraines were worse than before - or seemed to be anyway.
Best of Luck!!
