Dystonia Bulletin Board

They used that machine that vibrates and sends electric shocks into the muscle to try to help control pain.That felt neat-wierd, but didn't do anything much at the highest level and nothing when it was removed.

There was very light exercise (supported, recumbant elliptical) in 3-5 minute blocks (if you can call that a block). They worked on sitting and standing balance and trying to train my muscles to obey commands. (pressing, pulling, pointing, touching). They wanted me to learn to sit on a big ball, but that was crazy dangerous.

A lot was trial and error with our main goals in mind.

I actually felt a LOT better when I was in PT. I had a greater sense of physical well-being, just as if I were on the elliptical for hours like I used to do. I was able to eat better, sleep better...

I tried aquatherapy, but was so excited to be back in the water it triggered huge storms each time and honestly was hard to manage (entry/exit with two transfers, showering and dressing). It was just too much.

I think being able to get out and be with people was the biggest benefit of all.