I am sorry for your pain too!I get botox around the side of my eyes and above my eyebrows. I get around my nose and cheeks but also inside my mouth which works amazing for the jaw movements. I will probably also get some cervical. It sounds like you are having cervical symptoms whether directly related to the dystonia or as a side effect of all your facial and jaw muscles being so tight. i get massive headaches from my cervical dystonia.
So far we have valium that is helping me with my background dystonia and takes the edge of the paroxysmal but so far no luck on controlling the paroxysmal dystonia yet. trying Dilantin right now and will be trying artane in a bit. if they are ineffective we will see bu t maybe dbs.
I want to visit you in Sunny Queensland although it would be nice if we had snow here right now. i am in not snowy Vancouver. sunshine and rain all winter. Yay winter olympics.
