Posted by: marsela ®
02/08/2010, 08:52:22
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Hi There Lee
I just wanted to share with you our daughters troubles with facial/eye issues too. I know she's only four but thought it might help. She has gen dystonia and more recently bleph. She tells us her eye's are sore, sometimes first thin in the morning. She has light sensitivity, blinking and a few times where she hasn't been able to raise her eye lids. During a bad attack her face is effected. She has also been tellind us her head aches...kids her age don't make these things up !!
Your not alone it seems and I'm only sorry it's my baby girl and not me. However I try and fight as hard as I can.
Take care, from us here in Perth AU
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