Dystonia Bulletin Board

Having a tough time
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Posted by: bluemoon ®
02/08/2010, 17:43:41

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Hi, i have Tardive Dystonia,Tardive Dyskinesia and RLS. i'm struggling with it all at the moment, i keep telling myself it'll settle but that isn't helping much. i have neuropathic pain which isn't helping. it seems to take me ages to do even the smallest things. i'm so un steady,veering off to one side when i walk(i use walking aids), i've had several falls in the last few weeks which trigger off bad attacks/storms leaving me worn out,stiff and sore.the Dyskinesia seems worse in my face, the whole lot combined makes getting off to sleep difficult,tiredness added in makes it all worse.

I am lucky to have wonderful support from my hubby. i know i have a lot to be grateful for, i'm just weary of it all at the moment.
bluemoon




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