Musicians with Dystonia Bulletin Board

I have an idea, but I need help!
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Posted by: Kelly Jean ®
06/10/2008, 22:17:03

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I realize that many of y'all are not interested in blogging... My blog is established and I have a good amount of regular readers, most of which were unfamiliar with SD or any other dystonia before reading my blog.

I don't know enough about other dystonias... and reading clinical explanations is boring. I want to know about you... what your dystonia is, how it has affected you, and about who you are as a person. What did you do before? What hopes and dreams do you have? I would like to post your story on my blog... I could do a special feature on someone every couple of weeks... or once a month... depending on the kind of response I get from y'all. And this could be done anonymously if you'd prefer.

I've gotten some e-mails and have learned a bit about what some of y'all are dealing with. I was so focussed on my SD that I had no idea what the rest of y'all are going through. Let's work together and put a real face on dystonia... let's give others who haven't been exposed a look they can relate to.

If you'd like to do this... or if you just want someone to communicate with because you are hurting... please e-mail me at coffeebeankel@earthlink.net


Related link: The Righteous Buzz

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