"The most help (and inspiration) I've received has been from just talking to people who have or have had dystonia. But there isn't anyone in my area (in the UK) to talk to about such things."Well that are certainly people in the UK that help or have successfuly recovered from focal dystonia. I live in Devon.
If there's treatment/therapy you want, there's BAPAM in London: http://www.bapam.org.uk/index.php
This place in Scotland: http://www.musicianshealth.co.uk/research.html
Although the key to recovery is literally in your hands.