Musicians with Dystonia Bulletin Board

Anyone with hand dystonia got shoulder and neck pain?
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Posted by: gjirvine3000 ®
06/12/2010, 06:07:37

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Hi guys,

Since my diagnosis with dystonia of the hand a few weeks ago I have been looking into the condition and seeing links between the way my hand feels and the way my shoulder and neck feels.

I've always had neck pain... a symptom of being a fairly tensed up person and holding my tension in my shoulders I guess, but since around the time my hand starting playing up I've also had a really bad pain in my shoulder, under the shoulder blade, a kind of stabbing ache.

Before the dystonia diagnosis I went for Physio - didn't help, I went to a chiro - didn't help. Also my neck is massively tight and tensed, more so on right side than left. I don't get spasms that I can really identify, but my right shoulder IS slightly pulled forwards.

My thinking is... is this "secondary", linked to the dystonic hand problem. Or is is a focal dystonia of the neck/shoulder - i.e. a cervical dystonia?

I guess it would help to hear your guys thoughts on what other ache and pains you've had that you've linked to problems in your hand/arm.

Any thoughts very welcome.

Be well,

Gareth




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