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| Non-Profit Project to Let the World Know Musician's FD is "curable" | |||
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Posted by: GuitarTron ® 06/18/2010, 09:00:41 Edit |
Hi all, since I fully recovered (http://www.dystonia-bb.org/forums/mwd/posts/2533.html), about a month ago or less, I am devoting most of my free time trying to make this fact known, I could use that time to play even more than the 2 to 4 hours I manage to play a day now but I can not stop my urge to let this know and help others. I feel that the most spread notion (wrong by the way) in the world about this problem is that it is "incurable". Even I am not a professional musician music is my life so, during the 9 years I suffered this condition, I felt I was living other person's life, which is close to say I wasn't living. Now I am re-born, I have my life back, all of you who suffer this condition know what I am talking about. I am planning to make a web site to show all the info regarding recovery, I want to make a site that gives hope to sufferers of musician's focal dystonia. Today if you make a search on internet, most things you'll find are completely hopeless and discouraging. There's no better way to prove that musician's focal dystonia is curable and to give hope than showing the evidence of recovered people. There's where I am starting. The thing is that we need to put facts there, not such stories as a couple of "cases" I've read in this forum that say "Yes, I had 8 hours of sessions with Farias and I recovered 95%", evidence is evidence and it needs to be supported by facts right? do you agree? Probably not all of the musician's that recovered have videos showing when they were affected and other videos after being recovered but I think we can at least support a recovery case by telling a very detailed story of a case if there's no video prove. we could also show the evolution of cases that are in the process of recovery. I am open to any ideas, I am in the search of recovery cases either partial or full, I am in the search of whatever you may think it might help, or any who wants to collaborate (I'm not talking about money here) in any way you think you can. Until now, the only thing I did is a web site with my recovery videos. The site is musiciansfocaldystonia.info and distoniafocaldelmusico.info I registered the domain in spanish as well since I plan to do it in english and spanish in a first instance. I've made an email box for this matter, please contact me at sebastian@musiciansfocaldystonia.info Please tell me what you think. Cheers,
Modified by GuitarTron at Fri, Jun 18, 2010, 10:19:31 |
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