Posted by: lindaf ®
07/04/2010, 15:20:08
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I joined this BB as I didn't know where else to go for advise with my little finger. I have posted on the General Dystonia BB and not come up with answers. I don't play a musical instrument, but this is my story:
I have had Cervical Dystonia [also called spasmodic torticollis] for over 7 years. Coincidentally with this, my right pinky became very inflamed and painful at the end joint. I never thought of it being connected to C.D. so never suggested this to my G.P. when I showed him. He said it was osteo arthritis, and to take glucosamine. The inflamation went, but over time, the finger began bending at the joint.I couldn't straighten it unless I forced it. About a year ago, the second joint began bending too. And I can no longer force any of it straight.
I just saw a very experienced orthopedic hand specialist. "Goodness" he said, "I've never ever seen anything quite like that". He said he would refer me on to a finger surgeon specialist, but first to have it X rayed. The radiologist also said "I've never seen a finger quite like that." She was very interested in my neck dystonia as I sat awkwardly to position my hand. On the x-ray, the bones appeared healthy except the finger was in a bent position.
So I just wonder. Might it be I have dystonia in my little finger. The X ray doesn't show tendons and ligaments of course.
All my other hand joints are unaffected so at 65, if an ordinary aging thing was going on, other fingers would be iffy. What I don't want to do is have surgery, if it is dystonia.
I have not to date heard of anyone else with a focal dystonia in just a little finger [or any other finger] together with neck dystonia. So please, does anyone with musicians dystonia have a single dystonic finger that has slowly become permanently bent over time?
[From a genetics concern, my daughter is a violinist, so I am rather watchful of her!]
Linda
Modified by lindaf at Sun, Jul 04, 2010, 15:25:56
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